12th July 2019
The iHV is delighted to share updated Good Practice Points (providing up-to-date evidence and references for our members) on Babies who have neonatal jaundice.
Originally written by the Children’s Liver Disease Foundation (CLDF), these updated Good Practice Points (updated June 2019) have been reviewed by Harpreet Brrang, Information & Research Hub Manager, Childen’s Liver Disease Foundation (CLDF) and Alison Morton, Director of Policy and Quality, Institute of Health Visiting.
They set out what health visitors need to know about babies wth neonatal jaundice and also gives information about the CLDF Yellow Alert App.
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Personal stories of baby liver disease
In support of this updated GPP, we are delighted to share a Voices blog of a mum’s personal experience of her daughter’s baby jaundice, to help explain the importance of recognising baby jaundice early enough.
In addition, we share a short video to raise awareness of the liver disease biliary atresia. Sadly, Connor’s mum lost her son to this condition following a late diagnosis and, through this video, she hopes to raise awareness of this rare condition. Connor’s mum is desperate to share his story with as many people as possible, especially healthcare professionals, as he was seen by midwives, health visitors, his GP and the local A&E department before he finally had his
diagnosis. By raising awareness through the video, it may prevent this situation from occurring again. The rarity of biliary atresia may well have contributed to the late diagnosis, however despite its rarity biliary atresia remains the most common liver condition of infancy in Europe.