iHV has submitted its evidence for the DHSC Down Syndrome Act 2022 guidance: call for evidence which closes at 11.45pm on 8 November 2022.
The evidence base of what families with babies and children with Down’s syndrome value from health and related services has increased in recent years and should be acted upon in the design of services including health visiting. People with Down’s syndrome have a genetic variation. Whilst they share some common features, it must be emphasised they are all individuals with their own abilities, needs, interests and aspirations. Down’s syndrome is not a disease and people who have Down’s syndrome are not ill.
In the document below, we provide evidence in response to the questions for professionals, about health services, and in relation to the health visiting service in England.
iHV has resources to support its members in practice – please see Good Practice Points below: