Bliss
Bliss is a national charity which champions the right for every baby born premature or sick to receive the best care, by supporting families, campaigning for change,
supporting professionals, and enabling life-changing research.
This is Bliss’ main webpage about respiratory conditions for preterm and sick babies and this is their page about common infectious illnesses. It contains links to specific topics including: bronchiolitis, chronic lung disease and respiratory distress syndrome.
Bliss has several different parent-facing resources; their bronchiolitis resources include an animation specifically for the families of preterm babies and bronchiolitis. There is also a link for their Strep A resources, which includes information about what Strep A looks like on different colour skin.
Bliss has partnered with Black Mums Upfront and The Raham Project to raise awareness of RSV, and show the symptoms on black and brown babies so that parents can get the help they need. Download the PDF here.
Bliss website
Contact
Contact is a national charity for families with disabled children, whatever their condition and whether diagnosed or not.
For their work with the #HWFund, they have extended the organisation’s reach through the empowerment of parents and carers to increase awareness of RSV and bronchiolitis for families with children who have complex needs, rare conditions and other disabilities.
They have a variety of resources available including:
- A 3½ minute animation called Protecting your child from RSV and other winter viruses
- A recording of their Facebook Live Q&A with consultant respiratory
paediatrician Dr Martin Samuels (GOSH and Staffordshire Children’s
Hospital) - A FAQ section dedicated to RSV frequently asked questions
Contact has a variety of resources for families about Strep A, which include an animation, an information page and other resources translated into Polish, Arabic and Somali, these include:
- Contact’s Health Lead, Amanda Elliot, who worked alongside a medical practitioner to write answers to some of the most common questions that
they are hearing from parent/carers about Strep A - A webinar for parent/carers with Dr Martin Samuels, consultant respiratory paediatrician at Great Ormond Street Hospital with Baby and toddler groups and the Contact’s helpline for families of disabled children
- A webpage about Strep A, what it is, signs and symptoms, seeking medical attention, treatment and prevention.
- Information about flu which include:
- The flu vaccine
- Information about coughs, colds and flu
Contact also provide support for families with Baby and toddler groups and provide their Contact helpline for families of disabled children.
Contact - RSV resources
Contact - Strep A resources
Contact - Flu resources
Barnardo’s
Barnardo’s has developed bronchiolitis, RSV and Strep A information resources to help parents and carers understand the key symptoms to look out for, what you can do to take care of your child, and when to seek help.
Barnardo’s also provide the bronchiolitis, RSV and Strep A information in Urdu (اردو), Somali (Soomaali), Punjabi (ਪੰਜਾਬੀ), Bengali (বাংলা), Hindi (हिंदी), Portuguese (português), Ukrainian (український), Arabic (العربية), Polish (polskim) and French (français).
Barnardo's website
Asthma + Lung UK
British Lung Foundation and Asthma UK merged in January 2020, to become Asthma + Lung UK, to support everyone in the UK affected by asthma and other lung
diseases and become a voice for all respiratory diseases for change and investment in the NHS.
They have developed specific resources about Bronchiolitis and RSV. The resources include videos which are being translated into other languages.
Asthma + Lung UK website
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